We were able to leave last night instead of staying for a second night. The doctor looked at Cayden’s stats from a nap he took yesterday and determined that while his oxygen did drop, it wasn’t enough to keep him another night. We set up a baby monitor in his room so we can listen to him during the night.
He still has times where he stops breathing for a bit, but I think that is his normal. I’m not sure what our next step will be. I don’t know if he’ll need oxygen at night or if he’s okay just the way it is. Either way, he had a good day today. Ate better but still struggled a little bit drinking fluids. He did go out and play at the park. So he obviously feels good enough to play. We’ll keep him from school tomorrow to make sure he has enough time to recover. It is good to be home, nice to relax for a little bit during the day.
So here we are again, in the hospital for a surgery. We’ve had 4 or 5 surgeries with Cayden now. However this will be the first time we are needing to stay overnight. All of his surgeries have been minor is the sense they aren’t life threatening. It hasn’t been a heart or brain issue or cancer. New teeth, removing excess tissue, stints in the eyes. All pretty minor to me. Pretty routine almost for us. We have become so used to the doctor visits and the questions about medications, how he reacts to anesthesia, and more.
It’s hard to know what to feel sometimes, should we feel something more than “just another surgery”? Or is okay to have gotten to the point where visiting the hospital feels normal. I guess the one difference this time is Caleb was worried leaving Me and Cayden at the hospital. We’ve never had this situation before, we now have to explain things to Caleb in more detail than “We’re going to the doctor for your brother”. We now have to explain to him what the doctors are doing for Cayden, why and what to expect.
At four, I don’t think he quite understands all of it. He’s not used to leaving us behind and doesn’t quite understand why we aren’t coming home. I can’t imagine how hard it would be dealing with a serious issue where you spend days even weeks in the hospital with you kid fighting for their life. I know families that have lost children and are right now in that battle. My heart goes out to them, they are in a very difficult time and may not have the answers to the questions.
Our hope is that Cayden will be able to sleep a full night without waking up due to breathing issues. We’ll see how it goes, right now he is doing okay. He is needing oxygen to keep his stats up to where they should be. Not sure if that’s normal or not, but we’ll find out in the morning I’m sure what tonight showed. Thank you everyone for stopping by, staying with us, and praying for us throughout today. It means a lot to know we are thought of and cared for. Thank you also for loving our little boy and taking time to show him that.
Pains and Joys of Raising a Disabled Child 